Several have ask that they be kept apprised of Joy's ongoing health issues relating to chronic rejection or B. O. S. via a blog and this will be the initial resumption of updates albeit not as frequent as her pre/post surgery over six years ago.
She is home from the University of Chicago Hospital but very weak and extremely tired after ten days hospitalization for diagnosis and treatment of pneumonia like symptoms. This illness was exacerbated by the chronic rejection and an already compromised immune system.
She remains on O2 and largely confined to home for now although her doctor is agreeable for her to venture outside as she desires and is able. In so doing, it adds substantial risk so she will wear a mask and avoid physical contact. And anyone visiting her will need to wear a mask, avoid physical contact and keep their visits brief. Hopefully, she will regain enough strength to resume some of the things she enjoys but as always, we are taking it one day at a time.
We will meet with additional hospice representatives within the next few days to finalize implementation of that element of care and service for her.
I will continue to update the blog as progress and changes develop.
Wayne
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