Thanks to an observant and dear transplant caregiver Carol Blakely, she pointed out the pitfalls of late night postings after an exhausting day so therefore, I have corrected the date of the viewing and added the time of the Memorial Service. Carol lost her husband Wayne about a year ago and we not only share the transplant journey but the experience of losing a loved one. So she knows all to well.
Viewing hours will be from 4:00 PM to 8:00 PM on Wednesday 8/21/2013 and Funeral on Thursday 8/22/2013 at 2:00PM at the First United Methodist Church in Montpelier, Ohio.
A Memorial Service is planned for Friday, August 30, 2013, 7:00PM at Kingswood United Methodist Church in Buffalo Grove, Illinois.
If you wish to ask any questions or leave a comment outside of this Blog, please use waynebulla@sbcglobal.net.
Monday, August 19, 2013
Sunday, August 18, 2013
The End of the Journey
After a grueling day, Joy's long and painful struggle with post transplant issues came to an end at 10 PM CST Saturday night and she died at the Journey Care Hospice Facility.
We will have a funeral in Montpelier, Ohio sometime this coming week and will know more after we meet with the funeral director Monday.
We will have a Memorial Service at Kingswood United Methodist Church in Buffalo Grove, Illinois and no date has been set at this time.
Thanks to the many that have supported her ministry and have followed her difficult medical history.
No more needles, no more pain!!!, no more hospital stays, no more 50+ daily meds, no more being sick with stomach issues, no more altered mental state issues, no longer dependent upon others for her care and daily needs. No more.
RIP Joy.
Love,
Wayne
We will have a funeral in Montpelier, Ohio sometime this coming week and will know more after we meet with the funeral director Monday.
We will have a Memorial Service at Kingswood United Methodist Church in Buffalo Grove, Illinois and no date has been set at this time.
Thanks to the many that have supported her ministry and have followed her difficult medical history.
No more needles, no more pain!!!, no more hospital stays, no more 50+ daily meds, no more being sick with stomach issues, no more altered mental state issues, no longer dependent upon others for her care and daily needs. No more.
RIP Joy.
Love,
Wayne
Friday, August 16, 2013
Friday Night Update
Joy has been sleeping/dozing the last 3 days or so and most often only awake maybe 30 -60 minutes total in a 24 hour period all of which, led me to believe she was headed for more trouble again. And once again, she found trouble. She could fall asleep quickly and her cognitive skills were really impaired. She remains in a coma like status, unresponsive, does not move, no expressions-------nothing.
It was a major chore yesterday getting her ready, loading the car with O2, extra O2 tanks, walker, purse, water and whatever for her post hospital follow up appointment with her Transplant Team physician. Joy slept going, some of there time there and returning home. Once home, she sat in her chair, never getting up and falling asleep and staying asleep. Her blood numbers, kidney function, pulmonary function test, anti-rejection medicine tests were mostly abnormal. I doubt that Joy will remember anything about the visit but who knows. Anxious to find out if we have that chance.
The Journey Care (Hospice) Team members have been fantastic and beneficial not only to her but to me as well. They are doing what they can to insure her comfort and based upon our experience thus far, I would definitely recommend this service to your family / friends in need of this type of end stage comfort care.
She was extremely weak and tired prior to this so if she regains consciousness and has her faculties about her, it will be a long road to recover I would imagine.
Just moments ago (10:30 PM) she woke up somewhat, said one word, acknowledged Cathy and I being there and indicated she wanted to go back to sleep. We have been giving her oral morphine so it did not appear that she was in any significant pain as she exhibited earlier today when nurse was here.
A good sign? To soon to tell but at least a change.
Stay tuned..............but not tonight. Good night!
Wayne
It was a major chore yesterday getting her ready, loading the car with O2, extra O2 tanks, walker, purse, water and whatever for her post hospital follow up appointment with her Transplant Team physician. Joy slept going, some of there time there and returning home. Once home, she sat in her chair, never getting up and falling asleep and staying asleep. Her blood numbers, kidney function, pulmonary function test, anti-rejection medicine tests were mostly abnormal. I doubt that Joy will remember anything about the visit but who knows. Anxious to find out if we have that chance.
The Journey Care (Hospice) Team members have been fantastic and beneficial not only to her but to me as well. They are doing what they can to insure her comfort and based upon our experience thus far, I would definitely recommend this service to your family / friends in need of this type of end stage comfort care.
She was extremely weak and tired prior to this so if she regains consciousness and has her faculties about her, it will be a long road to recover I would imagine.
Just moments ago (10:30 PM) she woke up somewhat, said one word, acknowledged Cathy and I being there and indicated she wanted to go back to sleep. We have been giving her oral morphine so it did not appear that she was in any significant pain as she exhibited earlier today when nurse was here.
A good sign? To soon to tell but at least a change.
Stay tuned..............but not tonight. Good night!
Wayne
Thursday, August 1, 2013
Resumption of Periodic Postings Regarding Joy's Health
Several have ask that they be kept apprised of Joy's ongoing health issues relating to chronic rejection or B. O. S. via a blog and this will be the initial resumption of updates albeit not as frequent as her pre/post surgery over six years ago.
She is home from the University of Chicago Hospital but very weak and extremely tired after ten days hospitalization for diagnosis and treatment of pneumonia like symptoms. This illness was exacerbated by the chronic rejection and an already compromised immune system.
She remains on O2 and largely confined to home for now although her doctor is agreeable for her to venture outside as she desires and is able. In so doing, it adds substantial risk so she will wear a mask and avoid physical contact. And anyone visiting her will need to wear a mask, avoid physical contact and keep their visits brief. Hopefully, she will regain enough strength to resume some of the things she enjoys but as always, we are taking it one day at a time.
We will meet with additional hospice representatives within the next few days to finalize implementation of that element of care and service for her.
I will continue to update the blog as progress and changes develop.
Wayne
She is home from the University of Chicago Hospital but very weak and extremely tired after ten days hospitalization for diagnosis and treatment of pneumonia like symptoms. This illness was exacerbated by the chronic rejection and an already compromised immune system.
She remains on O2 and largely confined to home for now although her doctor is agreeable for her to venture outside as she desires and is able. In so doing, it adds substantial risk so she will wear a mask and avoid physical contact. And anyone visiting her will need to wear a mask, avoid physical contact and keep their visits brief. Hopefully, she will regain enough strength to resume some of the things she enjoys but as always, we are taking it one day at a time.
We will meet with additional hospice representatives within the next few days to finalize implementation of that element of care and service for her.
I will continue to update the blog as progress and changes develop.
Wayne
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