Joy has been sleeping/dozing the last 3 days or so and most often only awake maybe 30 -60 minutes total in a 24 hour period all of which, led me to believe she was headed for more trouble again. And once again, she found trouble. She could fall asleep quickly and her cognitive skills were really impaired. She remains in a coma like status, unresponsive, does not move, no expressions-------nothing.
It was a major chore yesterday getting her ready, loading the car with O2, extra O2 tanks, walker, purse, water and whatever for her post hospital follow up appointment with her Transplant Team physician. Joy slept going, some of there time there and returning home. Once home, she sat in her chair, never getting up and falling asleep and staying asleep. Her blood numbers, kidney function, pulmonary function test, anti-rejection medicine tests were mostly abnormal. I doubt that Joy will remember anything about the visit but who knows. Anxious to find out if we have that chance.
The Journey Care (Hospice) Team members have been fantastic and beneficial not only to her but to me as well. They are doing what they can to insure her comfort and based upon our experience thus far, I would definitely recommend this service to your family / friends in need of this type of end stage comfort care.
She was extremely weak and tired prior to this so if she regains consciousness and has her faculties about her, it will be a long road to recover I would imagine.
Just moments ago (10:30 PM) she woke up somewhat, said one word, acknowledged Cathy and I being there and indicated she wanted to go back to sleep. We have been giving her oral morphine so it did not appear that she was in any significant pain as she exhibited earlier today when nurse was here.
A good sign? To soon to tell but at least a change.
Stay tuned..............but not tonight. Good night!
Wayne
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